Tough Day Ahead

Ryan holding her Angel bear...Rosabella??!!

Hanging out at the hospital!

Hello all! We had another couple of days in the hospital last weekend. Last Friday she started running a fever and again we landed at the hospital for two days. This time thankfully we were able to go her Pediatricians office and bypass the ER!! Much better than sitting in the ER having her exposed to all of the yucky stuff that goes through there. We have now realized anytime she runs a fever and her counts are low, we are unfortunately just going to have to plan on a little trip to the Peds floor for at least a couple of days. More times than not she is just going to catch little viral bugs, but they have to treat her immediately with antibiotics in case it is bacterial. A bacterial infection would run ramped in her little body due to the fact she has ZERO immune system when her counts are low. We have also realized that it is better if we limit her exposure to anything. Needless to say she has become a bit of a shut-in.

Logan and Julie before the Carrie Underwood concert

Julie and I....I love her and miss her so much!!

Despite the fact that she has not gone anywhere she has been busy. We had a visitor come into town...her Aunt Julie. She was just here last month but came back into town to go to the Carrie Underwood concert. She surprised Logan with her second ticket, so Logan got to go to her first concert. She had a blast!! The amazing part about all of it is that Ryan did not say a single word about not being able to go. The whole time they were getting ready she was just excited for Logan. She got to hang out with Aunt Julie quite a bit so I know that was good for her. She does a pretty good job at understanding why she can't go and do. Amazing Girl!!

Ryan checking out the golfers on the golf course with the new binoculars

I LOVE THIS PICTURE!!!!!

Amazingly Beautiful!!

Ryan NOW is doing great...full of energy, and playing as if there is no battle to be fought right now! That is the way we like to see her!!! Her beautiful bald head is the only constant reminder!

Ryan Paige

Well this coming week will be heading down to UCLA. This is a week when she is "count dependent", but I am sure her counts will be high enough to receive the chemo since her counts were up to 1000 this past Monday and she has not had anything now to knock them down. She will be getting three new types of chemo this visit. It is hard for us when we know she is getting something new because we never know what side effects she will have from them. She is expected to get more mouth sores, no appetite, lose weight, and her counts will drop low and likely stay low for a while. So, Tuesday she will have a lumbar puncture treatment (procedure), which we have not had to do for a while. Also...two IV and one oral medication that she will take for 14 days. One of the IV medications she will have to get for four days this week and four days next week. Thankfully we have home health available to come to our house to take care of that for us so we don't have to travel down to UCLA everyday!

Thank you for ALL of the continued love and support. We can not express our gratitude enough! Continued prayers would be much appreciated this coming week...that she will have limited side effects and continue to be victorious.