Light the Night

Light the Night took place all over the country and we had people walking in Ryan's honor all over the country. Such an awesome way to show support! I am truly thankful. With Ryan beginning this new phase of treatment she needed an Echo cardiogram (ultrasound of the heart). She needed this because one of the medications she will be on could cause damage to her heart. Through talking to her doctors they say the risk is now much lower now because they have discovered giving the medication over a 45-60 min period verses giving it as a "push" (1-2 minutes) has had less of an effect on the heart. This type of information is made possible due to studies being done. Studies made possible by The Leukemia and Lymphoma Society.

The Illuminators
Tacoma, WA September 28th

This is where Sarah and her crew the Illuminators walked.
She said they could not have asked for a more perfect evening!!

The Valle family...our friends from Redlands
Riverside, CA October 3rd

Team Ryan
Royal Oak, MI October 3rd

They said it was freezing, but they had a blast!!!

My beautiful cousins!

Dad, Kim and Aunt Diane

Mark----GO Team Ryan!!

Thank you again to all those who walked and to those who donated!! We appreciate it, Ryan appreciates it, and children/people all over the world appreciate it!

Long time no blog!!!

Hello everyone! We are doing well and have officially moved into our new house!! I love it!!! We love it!!! It is the perfect amount of space for us and all of our stuff. It has been one heck of a move but it is all over now, and just in time for Ryan to begin Delayed Intensification, the next phase of treatment.

Ryan wearing her Halloween hat she got from the folks at UCLA.

We went down to UCLA this past Tuesday....the 14th. She was delayed a week from starting (she was supposed to start on the 7th) due to her counts not being high enough. Everything went well. She had an IV push medication and her lumbar puncture treatment. She did start a new IV medication that is supposed to really wipe her out and drop her counts. We are also expecting her to lose all of her hair within a week or two. So, we will be having the "head shaving party" sooner than later. She also is taking the steroids again. Only for seven days, but she may get back the hunger cravings again. They also gave her a Flu shot. Thankfully they were able to do that while she was out for her procedure. She had an Echo Cardiogram (ultrasound of the heart) because one of the new medications she is taking could have an effect on her heart. That is a little scary to think about. Other than that, everything went fine and we will be going back down next Tuesday!!

Aunt Julie and the Kiddos

We also had a quick visit from Grams and Aunt Julie. They got to be here for Light the Night and also my mom got to come down to UCLA with us. She now has a visual of what goes on down there. It was nice to have them here! It was the coldest it has been this year so they left with colds and we all got colds....yuck!

Everything is going okay and I will try to blog more now that we will be going down there every week and there will be more to report. Thank you so much for being patient with me. Also thank you again for the continued love and support!! Love to ALL!!!