The Big Day

The "Big Day" was not so big.....everything went really well last Tuesday. She was in a great mood! I think because she has been feeling fairly normal lately they finally got to get a dose of the real Ryan. In the past she has been very quiet, and not very friendly. This time she was talking and laughing when they would try to play with her...it was great! She had her procedure and that went well. She got her IV meds and that all went well. They have ordered her daily IV Meds to be given at home, so home health will be out to give that the rest of this week, then next week Tues., Wed, Thurs, and Friday. The medications that she is getting through her IV and the ones she will take orally are going to cause her counts to drop....a lot. So, again we will have to be on the look out for fevers, and she will continue to be a shut-in. I am so glad it is Hot-cocoa, warm fuzzy blanket, and reading books weather!! That makes it a little easier. Because her counts will be low for a while.....we don't have to go back down to UCLA until December 16th....YEAH!


We also got news they are going to eliminate one of the phases. The next phase would have been Intermaintenance #2 then Maintenance. Now she will just be starting Maintenance. She has just responded so well! I truly feel blessed. So all is well, and we just have to pray for no fevers, and for her little body to continue to fight like a Champ!!! Love to all!!