A little hospital visit

Well, we went to UCLA on the 21st and everything went GREAT! No problems at all!! Her "counts" were up to 4300. WOW! We were not expecting that. Because her counts were so high on Monday, we allowed her attend Kyle's last football game on Saturday. They had put together a special thing for Ryan to come out on the field and be named a Team Captain. The boys also all signed a football for her to take home! It was an awesome experience for her and although she was a little nervous at first she warmed after she got out there. So neat to see all those boys that have to be so tough on the field be so sweet to a little girl. Thanks Guys!!

She also got be a flower girl and walk down the aisle Sunday. She was supposed to be a flower girl for her Uncle David and Aunt Holly's wedding, and we had originally respectfully declined due to the doctors orders. When her counts were as high as they were we figured it would be okay. She had a dress, and Matthew, Logan, Kyle, and Adam were all in the wedding. Then she was having such a great time we decided to allow her to stay for the reception. She had a blast....we all did! It was a beautiful wedding and a beautiful reception! Congrats to David and Holly!!!

Monday Miss Diana (our home health nurse) came to draw Ryan's labs and by 1pm was letting us know that her counts were now down to 500!! WOW again!! We were not expecting that either. We did not realize that they could drop that quickly and we were therefore riddled with guilt for letting her even go to the wedding!!! Tuesday when we went down to UCLA I started bawling when I saw the docs. I confessed to allowing my daughter to participate and enjoy herself and they reassured me that it was all okay. Family events like this are sometimes worth it. They just told us to hope and pray for no fevers!!?? All was good, we came home, and then....she spiked quite the fever. She had slept on the way down to UCLA then slept all the way home, which is not normal for her. After being home for a while I noticed she was burning up. I took her temp and it was 102.3. We went into major panic mode. We called UCLA immediately and were advised to get her into the ER A.S.A.P. Thankfully they had given us pediatric face masks when we in the clinic that day. We headed to the ER and ended up being admitted for 2 days...YUCK!! The real Yucky part is that by the time she got up to the Peds floor her fever was almost gone. Unfortunately with her situation, she has to be admitted and receive IV antibiotics regardless because they have no way of knowing whether it is viral or bacterial. So, we spent a couple of days bonding and bored!!!

The great thing from all this is that her counts came up to 1400 allowing her to go Trick or Treating!!! Originally on Tuesday they had told us she would not be allowed to go Trick or Treating because her counts were so low. But, by us being in the hospital we had an updated number. We made it around the block and that was about good for her. The only bummer is we usually host Trick or Treating at our house....Family, Hot Cider, Hot Chocolate, and snacks. This year we were not able to do it. That's okay because next year we will be back at it!!!!

We now have a couple week break from clinic, but I will be posting some more entries. I still have to put up our Light the Night entry and want to put up some pictures from the wedding.

Thank you again to everyone for being so supportive. EVERYONE is truly a part of her success in this journey. Love to all!!!

P.S. I am trying to upload pictures from Kyle's game and Halloween on here and for some reason it won't let me so I will post those later!!