The shirts are here! The whole family wore them in support of Ryan. Everyone at the clinic loved them! Unfortunately we did not get a picture of us all together. But next week will not hesitate, and can't wait to get pictures from those who have their shirts so we can post them on here.
It was a long day....Unfortunately we did not get home until 8ish last night. We made it down to LA around 9am, saw the doctors and had to get blood drawn so they could see if she would need a transfusion. Her blood counts were a little low when we had gone to the ER Friday night. They accessed her port for the first time EVER to get the blood. That did not go quite as smoothly as I had hoped. It is a pretty good sized needle that they have to poke her with. The good part is they know right where to poke and that's it, they leave it accessed for the rest of the visit. She did end up needing a transfusion (so she got the blood through the port). Then they did not have her procedure (the lumbar treatment) scheduled until 2:30. We were a little ticked, just cause she is only 4 and hadn't had anything to eat or drink since 9pm the night before. We were just thankful she was not taking the steroids anymore. Her appetite has definitely decreased lately. She had that procedure after the blood transfusion, and everything went smoothly there. Everything was just taking place a lot later than we are used too.
Ryan's Aunt Julie and her boyfriend Jason had met us down there and had offered to hang out with Logan and Adam during Ryan's appointment. We were hoping to all go to the beach together, needless to say we were not able to. But they got to go and had a great time. They almost missed Julie's plane thanks to LA traffic.
It was a long day, but Ryan is feeling great now that she has had the transfusion!
Love to ALL!!!
P.S. Hope everyone likes the music!!!!
Wednesday, July 23, 2008
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6 comments:
Love the shirts. Love the pictures (The girls are SO beautiful their smiles melt my heart). And LOVE IZ's version of Over the Rainbow. I had the same one on my Myspace for awhile! :)
Hey Guys!
We were out of town and didn't check in on the blogs much while gone. I am so glad to hear Ryan is fighting on. She is a little trooper.
We totally want t shirts for the whole family. They are awesome!
We miss you and are so thankful for this blog. Being able to connect on this small level is so good.
Love you so much.
Hi guys! We want t-shirts too!!! they look awesome....Love green:)
We are glad the tranfusion made you feel better....Always thinking of you all.....
Love Perrie
Oh course I like the music! Whoever helped you set that up must be so amazing and a genious none the less!
Ryan you are an amazing little girl! I love you soooooo much! I miss all of you and will keep the whole family in prayers!
The music is amazing, I love Martina McBride's In My Daughter's Eyes.
Ryan I hope you feel better you are wonderful!
Logan and Adam are good sibling suppporters too =]
Love you all sooo much!
hey my little ryan its kaelin and my two friends jeslyn and alyssa. we want you to know that we allll love you and are praying for you.
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