Hanging out

Hello out there!!! We have not been up to much. Nothing too eventful around here, fortunately. Matthew was able to take Logan out to the lake with some friends for a couple of days of camping and boating. They had a great time! We hung out around here and watched movies and did some coloring, playing, baking, and learning. Ryan was due to start preschool in the fall but obviously won't be able to start then. So, we are trying to keep up so that when Ryan gets to go in January she will be right along with the rest of her classmates.
We have noticed that Ryan has really started to lose her hair now. From the front you can't really tell but when you look down from the top you can see that it has really started to thin out. She can't stand it cause they keep tickling her back as they are falling out. That seems to be the only part that bothers her. It is really hard for me to watch my baby girl go through this. But, I don't let her see it!! It is also hard because her little face and body has transformed so dramatically. Not only has her face taken on that "moon" shape like I said, but her abdomen is totally distended. Her little legs are still so skinny then to have this belly. It is extremely tough to see! She still has a very strong spirit. She has been up more lately doing stuff around the house. A lot more playful and talkative. And stilllll eating!!! It is insane (the eating I mean), really no joke!!! I had to run to the neighbors to borrow a can of black olives cause she was having a craving so bad. Nuts huh???
This Tuesday will be another long day for us, especially Ryan! Please pray for her. She will be having the chemo in her lumbar spine and the bone marrow aspiration.....again! This is a huge day! Again they will be testing her bone marrow to determine the effectiveness of the chemo plan she is currently on. Although they said after the great results they saw last time they don't foresee there being higher then 5% Leukemia blasts, they say you never know for sure. She is sedated during the procedure so the only thing that tends to bother Ryan is the not being able to eat. We also have an appointment with surgery dept to have her port put in maybe next week??!! We are so excited! This will remove all of the stress on Ryan during dressing changes for her pic line (there is very sticky clear tape stuff over the pic line). She hates to take off band-aids so you can only imagine how traumatic it is. The Pic line needs to be flushed everyday and the dressing changed once a week. Whereas, the port is surgically placed and remains under her skin. She can swim, and take baths and it does not need to be flushed. It will be great....I hope! Well, I will write again probably Tuesday after we get back. Thank you all again for your love and support and most importantly prayers. We know that is the driving force behind all of this going so smoothly. All our love!!!