Hellllllooooo!!! I can not believe how long it has been since I have posted. It has been crazy busy for us and I am happy to report that currently all is well. Lets see....where to begin????!!!...
Ryan at Relay for Life
The kiddos at the Fire station on Easter
Ryan with her friend Payton at preschool
Ryan at the station on the back of the fire truck
Ryan at school for her Easter party
Ryan Riding a two wheeler!
The kiddos acting goofy
We were seeing the I-max feature while down in LA
Ryan had a birthday at the end of March. March 30th was her birthday and Adams was on the 10th of March so we had a huge birthday bash for both of them on the 29th of March. It was a Hawiian theme, and we had a huge bounce house, arts and crafts table and a whole lot of fun! We had a great time and there were probably 20-25 kids running around...it was great.
Beautiful girls!!!
Unfortunately, we had to post-pone our trip to Disney World through Make-A-Wish. Ryan had her longest hospital stay since she was first diagnosed. She got her counts drawn on a Monday and they were only 400, by Tuesday she had a temperature, and off to Memorial Hospital we went. Her labs kept giving us crazy results and her counts continued to drop...so, there we sat. Finally, after 3 days, she was released from the hospital....that night she spiked another fever. Back to the hospital we went for another 3 days. She got discharged the day before we were due to leave for our trip. With the swine flu going on and her counts just not high enough to take her on an airplane (I would have been a nervous nellie the whole time), we decided to wait on the trip. Matthew called Make-A-Wish....they were incredible. Very understanding! The kids were bummed, but also very understanding. What great kids we have!
So, since then she has been home and doing well. We just had her counts drawn this past Monday and they are now up to 1600...AWESOME. We also had her appointment down at UCLA on Tuesday and all went well. They started her back on her oral chemo. (When her counts drop so low they stop all chemo). Now she is back on them and we will see how well she does. I may have explained this before so I will just recap. The goal is to have her on as much as her body can tolerate, without having her counts "in the toilet". The goal range is between 750 and 1500. So, they take it week by week and increase it by 25% each week.
I am so excited to report...the little boy that I had asked everyone to pray for a while back, Ryan Wilson, had his bone marrow transplant from his sister and is doing very well. After many weeks in the hospital at UCLA, he is now home and doing great! Thank you to all those who prayed for him. He is such a cutie!
We are all excited for summer, right around the corner. Sarah, Kyle's mom and their family will be coming down here for Kyle's graduation. We can not wait to see them. At the end of the summer we have a trip planned to Michigan, and can not wait to get back there. It has been 2 years since we have been back there to see everyone. We miss them all so much!
I promise I will not let this much time pass before my next entry. Thank you to everyone who continues to pray for Ryan. June 16th will be 1 year since she was diagnosed and I plan to make a tribute video. We are about a year and a half from the "cure date." All is going according to plan so far and we just pray for all to stay on track. Hope this entry finds everyone well!
Love to all!
4 comments:
Hi Ryan, maybe you remememer me Kier Butterworth Emiie's mom. Logan and Emmie were in dance and then gymnastics together. Anyhow, just wanted to tell you what a beautiful girl you are, and thank you for sharing your blog with our family. We are so happy God put our families together, in His special way. I have really enjoyed getting to know your mommie, and really was blessed to read your blog,and look at all the wonderful picture. I wanted to tell you that our family will be praying for you to stay strong and continue to share that beautiful, inspringing smile with everyone, it trully is infectious :)I hope we can get together with you girls over the summer for swim days?? Love and prayers to you and your wonderful family. You truly can do ALL things through Crist who does strengthen. Blessings,Kier Butterworth & Family
Love Love LOVE the pics. Everyone looks so beautiful! I cannot WAIT to see you guys this summer!!!
xoxoxo
Love, Jackie
Hey Kimmy - still checking in on Ryan! Glad to hear she is doing better, I can't believe its almost been a year! Her hair is so cute now! Sorry you had to postpone your trip but you'll have a great time when you do go. I volunteer for MAW in Pittsburgh and they are an awesome organization! I have a "Wish Family" at Disney this week! Keeping you all in our prayers!
Sheila Duffy (Burke --from Pittsburgh)
hey Ryan, this is Cassidy Fraley, Sarah's friend, you may remember me from soccer, i miss you and your sister and i am so glad that you are doing better!!! when i heard that you had cancer, my heart just sank because i had no clue how you were going to make it through chemo... my friends mom got cancer a few months after you were... that just made me even more wooried, i hope your making the best of life and maybe i will see you at sarah's over summer!!! you are a very beautiful little girl and you are getting pretier and pretier... love you forever and i will keep you in my thoughts and prayers....
xoxoxoxoxoxoxoxoxoxo :)
-cassidy fraley
p.s. dont worry about my friends mom... her cancer started and ended quickly and she is doing wonderful... when i told her about you she said that she would keep you in her prayers to!!! love you and see you soon (hopefully)
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